I am better than when this all hit me. A year ago I was in really bad shape. Don't ask me what I am doing differently, because that is the fun of my condition it makes no sense. I am learning how to manage it all. I have found certain drugs to work without making me sick. But, on the days where no pill works I am learning how to still live. Whatever I have it hurts and it makes me want to just sit on the couch and not move. But, when I move and get going it not only takes my mind off my pain to some degree, it usually helps. So daily I struggle to remember this fact and to get off my butt and move. Some days it feels like climbing Mount Everest as I get up and move through the pain.
More than anything though I am working to really live by what Paul writes in Philippians 4:12-13 "I have learned the secret of living in every situation...For I can do everything through Christ, who gives me strength." In this case the situation is pain, but I know God can help me overcome and that my purpose in this world can still be achieved if I rely on Him and His strength. That is the thing I want the most.